shadowkat: (against the grain)
[personal profile] shadowkat
Here's a good article about celiac disease and gluten intolerance on Newsweek's site:

http://www.msnbc.msn.com/id/20643573/site/newsweek/

Here's the first three paragraphs:

"Sept. 17, 2007 issue - In 1988, Alice Bast came home from a vacation in Cancún with what seemed like a classic case of Montezuma's revenge, but with one crucial difference. It didn't go away. As days of illness turned into months and years, her weight dropped from 130 pounds to 110. Her hair fell out in clumps when she brushed it. Her teeth began chipping, and she suffered severe fatigue, migraines, depression and tingling in her fingers and toes. "I thought I was dying of cancer," she says. But the worst moment came in 1990, two weeks before her second child was due. Bast suddenly became aware that the baby wasn't moving. Her husband put his ear to her belly and looked up with panic in his eyes. "I hear nothing," he said. Their unborn daughter was dead.

Twenty-two physicians tried and failed to make sense of Bast's symptoms. It was a veterinarian friend who finally suggested a possible cause in 1994. "Dogs sometimes have trouble digesting grains," the friend said. Within days, Bast had obtained a formal diagnosis of celiac disease—an intolerance for gluten, the protein in wheat, rye and barley. The resulting damage to the small intestine makes it hard for the body to absorb nutrients. Far from being dismayed, Bast was thrilled. "I wasn't dying. I wasn't crazy. I was elated!" she says. Better yet, just two weeks after eliminating these grains from her diet, she started feeling well again. In 2003, she established the National Foundation for Celiac Awareness to help alert others to the existence of the disease. "All those years I lost, I don't want other people to lose them, too," she says.

There are plenty of people who stand to benefit from her work. Until recently, celiac disease was thought to be rare in this country. But in 2003, Dr. Alessio Fasano at the University of Maryland's Center for Celiac Research published a study in the Archives of Internal Medicine showing that the ailment actually affects 1 in 133 Americans, or roughly 3 million people. And they're not just Caucasians, as previously believed, but African-Americans, Asians and Latinos as well. In 2004, the National Institutes of Health formally recognized Fasano's conclusions. Overnight, the disease went from "rare" to "common," although it remains vastly underdiagnosed. "Most GPs don't look for it," says Elaine Monarch, executive director of the Celiac Disease Foundation. But increasing awareness and more sensitive blood tests for the disease are leading to more diagnoses—which in turn are causing more companies to start marketing gluten-free foods. "When we got gluten-free beer, that was huge," says Vanessa Maltin, author of "Beyond Rice Cakes: A Young Person's Guide to Cooking, Eating and Living Gluten-Free.""

It's difficult to be gluten-free and I'm not celiac so much as highly sensitive to it, so I have a little more leeway in that I don't worry about French Fries being fried in the same oil.

What keeps me gluten-free? Fear of being sick. I got *really* sick in 2005 and ended up in the emergency room. A kindly gastrointestinologist - explained that while she didn't see any celluar damage and I hadn't lost the poundage most celiacs do, I did have a resistance to gluten and it made me ill. Try going off it. I did. I haven't had a cold or come down with the flu since - I used to come down with it every three or four months - catching whatever was in the office or on the train - my immune system was weak. Always catching colds as a kid and young adult. This is the first time in my life I've gone 2 years without anything more than the occassional allergy flareup. I also stopped feeling as depressed, tired, and anxious. I slept better. Had less heartburn. Less painful cramps during menstruation. To me eating something with gluten is akin to trying to digest expandable glue.
So when you offer me pizza with wheat crust? You might as well be offering me glue. To a celiac? It's arsenic.

But as the article refreshingly points out - it is not impossible and it has become a lot easier than it used to be. The hardest part is at work and where I happen to work - which is unfortunately in Fast Food central - Penn Station.
And in a department that loves sugar and baked goods. But after a while one adapts and learns how to say no to it and not crave it. It just takes time, is all. Like everything else. The first day it's hard. So's the second. But by the 100th, you are halfway there.

A gluten sensitivity or intolerance is worse than an allergy. And is not the same as the Atkins diet or South Beach or any other fad.

Newsweek article

Date: 2007-09-14 03:56 pm (UTC)
From: (Anonymous)
Happy to hear that you are doing well on the GF diet. Penn Station would be a difficult place but there are many GF friendly places to eat in NY. There is a great book, "The Gluten-Free Guide to New York" by Maria Ann Roglieri that might be helpful to you, if you haven't seen it already. Have you been to Risotteria? Fantastic for GF pizza and beer!

Re: Newsweek article

Date: 2007-09-14 05:33 pm (UTC)
From: [identity profile] shadowkat67.livejournal.com
Not sure who this is...

At any rate - yes, there are several restaurants around NYC. I belong to a Celiac Meetup Group that does a wonderful job of finding them. Haven't been to Rissoteria yet - which is a out of my way and a pain to find, not to mention packed a lot of the time - not to mention pricey from what I've heard..

But Pete's Gourmet Diner up on 84th and Third Avenue is great. You can get gluten-free pancakes, a gluten free Reuben sandwich, gluten free past, and gluten-free deserts.

Another good place is Chipolte - where you can get a bowl with all the fillings, not bread - called Burrito Bowl. It's the place I go to near Penn Station. And salad's work to some extent. (I don't have to worry as much about the drops of gluten oil that celiacs do, thank heaven. So can handle the salad bar without too much headache.) Pret Manger is great as well but no longer nearby unfortunately.

At home? I have a health food store nearby where I buy all the gluten-free items, it's no Whole Foods or Trader Joes, it's Park Natural and a tad on the pricey side. Also doesn't have the fresh baked gluten-free items, but it has other things like gluten-free frozen waffles.

It is easier for me living in the city. But it is not simple. The problem is again eating out with, socializing with, and going to work with people who are NOT gluten-intolerant, which is everyone. I adopt the attitude of - look I can't eat that - so I can't go to a place that serves only wheat pizza or KFC or places like that. If you want me to come - we have to go somewhere else. Or I'll just make other plans. Usually I eat before going to parties or people's houses or make it clear what I can't eat. At work - I say no thank you and if pressed explain it to them. They forget. I explain again. It's really not that different from being a diabetic or lactose intolerant.

Unfortunately my work place is into food - it's very weird. When I wasn't gluten-intolerant never got free food at work or very seldom, now that I am, all the bloody time!

People who are not gluten-intolerant or gluten sensitive can't understand what it is like. And people who work at home or don't have to work in a work place that is into food - like donuts every Friday, a cake every week, etc...also don't get that issue. And of course everybody relates to food differently. I have a friend who eats to live, she hates eating and is known to go a whole day without doing so. Food has relatively little importance to her. I - on the other hand - adore food. Love to cook it, eat it, and the more varieties the better - but my body doesn't and sooner or later you have to start listening to the body.

Date: 2007-09-14 06:30 pm (UTC)
From: [identity profile] beanbeans.livejournal.com
That was a great article. Thanks very much for sharing it.

Date: 2007-09-14 08:09 pm (UTC)
spikewriter: (Default)
From: [personal profile] spikewriter
I'm allergic to onions, which are in many, many foods, so I can sympathize. I have a much wider variety of foods I can eat, but, yeah, there are times it causes problems when you're out socializing. I've got used to being deemed "picky" or "fussy" by people because, as you said, it's better to listen to your body.

Thank you for the post and the link. Very informative.

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